6  Follow-up in adult patients

Most patients with FVII-deficiency have very mild symptoms and regular check-ups are not necessary. However, the patients need to be well informed on the genetic base of the disorder, inheritance, bleeding risk and different treatment options and when treatment is recommended. Patients should be informed to contact a coagulation/hemophilia center in case of bleeding or surgery. Written plans for hemostatic treatment in case trauma or surgery are recommended.

Annual controls are recommended for patients with a more severe phenotype at a comprehensive hemophilia care center where team-based care including physiotherapy, if needed opportunity for consultation by an orthopedic surgeon, social counsellor etc. according to guidelines from the Nordic Hemophilia Guidelines.

0.1 Recommendation for follow-up in adult patients

High-risk patients should be offered annual follow-up visits at a comprehensive hemophilia care center.